I’m sure many people have been waiting to hear about what it was like being on the Vertex (Orkambi) drug trial. I haven’t been able to post about it due to the strict regulations that were put forth by the trial. Now that I have been officially terminated from the study, I can finally post about my experience! Continue reading “Vertex: The Journey to Orkambi”
I got my port placed a little over a month ago and just got to put it into use for the first time. While I knew there were several benefits, which led me to my decision to get one, my experience so far has been phenomenal! I was so stubborn when making the decision, but now I wish I had done it sooner. However, I was nervous. I wanted to make a list of my 10 favorite things about my new port that I have just experienced so that if there are any others out there that are nervous, you can read this list and realize how cool it will be to get one! Continue reading “10 Reasons I love my port!”
A month ago I made the decision to get a port. It was a long and difficult decision for myself to make for several reasons. There were so many pros and cons in my head, but mostly it had to do with being stubborn. If you know me personally, that is not a surprise.. Continue reading “Journey to the Port”
The Living, Breathing Wendy 