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The Living, Breathing Wendy

A blog about living with Cystic Fibrosis.

Month

October 2015

Vertex: The Journey to Orkambi

NEW WEBSITE: FULL POST HERE!

I’m sure many people have been waiting to hear about what it was like being on the Vertex (Orkambi) drug trial. I haven’t been able to post about it due to the strict regulations that were put forth by the trial. Now that I have been officially terminated from the study, I can finally post about my experience! Continue reading “Vertex: The Journey to Orkambi”

Road to Roo: Day 10-11

NEW WEBSITE: FULL POST HERE!

We have finally arrived upon the last two days of our Bonnaroo road trip! These were some fun-packed couple of days, too! While we have driven the route that we took home a few times before, we still had some activities along the way that we wanted to do. Continue reading “Road to Roo: Day 10-11”

10 Reasons I love my port!

NEW WEBSITE: FULL POST HERE!

I got my port placed a little over a month ago and just got to put it into use for the first time. While I knew there were several benefits, which led me to my decision to get one, my experience so far has been phenomenal! I was so stubborn when making the decision, but now I wish I had done it sooner. However, I was nervous. I wanted to make a list of my 10 favorite things about my new port that I have just experienced so that if there are any others out there that are nervous, you can read this list and realize how cool it will be to get one! Continue reading “10 Reasons I love my port!”

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