One of my favorite activities in the whole world is traveling. Once I had my wake up call that my health was declining and I couldn’t deny it anymore, I realized that I really need to make sure that I am doing the things that I want to do while I can. A big goal of mine is to travel as much as possible. Continue reading “New Orleans Fun!”
I cannot believe that it has been two months since I wrote a blog post. I have been keeping insanely busy with the holidays and fixing up my apartment. So I guess I’ll start with all of my fun projects that have been taking up all of my time and energy. Continue reading “Keeping busy!”
The one thing that has been drilled into my head the most growing up is that CFers can be very dangerous to each other. The infections and bugs that we grow in our lungs can be very contagious. Therefore, we are not supposed to be within an arms’ length of each other at the closest. This makes it really hard to meet the people who you can relate to the most.
Continue reading “Cysters and Fibros and finding the right support”
I’m sure many people have been waiting to hear about what it was like being on the Vertex (Orkambi) drug trial. I haven’t been able to post about it due to the strict regulations that were put forth by the trial. Now that I have been officially terminated from the study, I can finally post about my experience! Continue reading “Vertex: The Journey to Orkambi”
We have finally arrived upon the last two days of our Bonnaroo road trip! These were some fun-packed couple of days, too! While we have driven the route that we took home a few times before, we still had some activities along the way that we wanted to do. Continue reading “Road to Roo: Day 10-11”
I got my port placed a little over a month ago and just got to put it into use for the first time. While I knew there were several benefits, which led me to my decision to get one, my experience so far has been phenomenal! I was so stubborn when making the decision, but now I wish I had done it sooner. However, I was nervous. I wanted to make a list of my 10 favorite things about my new port that I have just experienced so that if there are any others out there that are nervous, you can read this list and realize how cool it will be to get one! Continue reading “10 Reasons I love my port!”
A month ago I made the decision to get a port. It was a long and difficult decision for myself to make for several reasons. There were so many pros and cons in my head, but mostly it had to do with being stubborn. If you know me personally, that is not a surprise.. Continue reading “Journey to the Port”
I was writing about the last couple days of my Bonnaroo trip this last week, but I need to take a side step to talk about stress. I have always been an active and ambitious person. However, lately I haven’t been able to live up to my standards. There is this growing contradiction in my physical abilities and my mental ambition. At my doctor appointment yesterday, my wonderful nurse practitioner pointed out that stress can cause health dips. After having a night to think on it, I really think that’s something that may be affecting me more than I realized. Continue reading “Stress and Cystic Fibrosis”
Sigh… The last and final day of Bonnaroo 2015. It was such a fun and exciting year, and luckily not as hot as the last time we went. However, by the last day we were sick and tired of the sun because even though it was supposedly supposed to storm all weekend, it was sunny with NO clouds… Go figure! Continue reading “Road to Roo: Day 9”
The Living, Breathing Wendy 